Saturday, October 3, 2009

I've Got A Case Of The Pity-Mes

I'm sitting here looking at 2 tickets for the Springsteen concert at Giants stadium, Section 120, that I purchased on 6/1, that went unused last night. It's joining a growing collection of other tickets/invites that went unused because, when the day of the event finally arrived, I wasn't well enough to go. Whatever this thing I have is, fibromyalgia, chronic fatigue, MS, or the newest opinion, peripheral neuropathy, it's ruining my life and making it impossible to commit to anything ahead of time, not to mention the lost money spent on events never attended. Last night's tickets cost $235. Within the next month, I have two family weddings and my class reunion.
I saw a new specialist, a neurologist, last week and had some tests; still waiting for the results. Meanwhile, it looks like another weekend spent in bed, hoping I can accumulate enough rest to make it through the next work week, which is not really how this undiagnosed malady works because, no matter how much rest I get, I never feel rested. I'm in constant pain, from my toes, feet, hands, fingers to even my mouth and tongue. I'm down to eating only soft foods because anything else hurts my mouth. My head hurt so much the other day, I took one of my husband's migraine pills.
On the days this past week I worked a full day, I went directly to bed each night. This is no way to live. I'm praying that this new doctor will be able to help me.

8 comments:

  1. I'm in tears for you. You are a brave one. I hope they find what's wrong and I hope they can make you well. I hope you can try to treat some of the symptoms at least, somehow. I can't imagine that much pain inside my body.

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  2. This is one post that I can relate to whole-heartedly. I have Sjogrens and Fibromyalgia and they rule my life too. Making plans is nearly impossible. Im glad you're seeing some specialists and I hope they can help you and give you a diagnosis.
    And I am sooooooo sorry you missed the Bruce concert. I saw him when I was 13 and have always wished I could see him again.

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  3. Hoping and praying that you will find relief soon!

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  4. OMG< I did not know that you were that ill :(((

    There is a girl that follows my blog, her name is tricia, you need to check out her website.
    http://www.fibromyalgiaisnotmylife.com/

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  5. Sorry to hear that you are not feeling well. My thoughts are with you. I hope that new Doctor will get to the bottom of this problem.

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  6. I don't know what you have, sweetie, other than my prayers for you to get the help that you need, because you're right, this is no way for such a vivacious lady to live. God Bless!!!

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  7. Ick that's really tough. Sucks when doctors can't find the solution. I was sick constantly for 15 yrs before I finally figured out it was food allergies (atypical reactions caused by minor food allergies). Hopefully you can find answers soon.

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  8. Good luck with the neurologist - seems like a good step to take. And that is really awful about missing the concert. I know you really wanted to go. Best wishes that your body cooperates for you moving forward.

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